On Needles, Hot Pink Umbrellas, and Cereal
Yesterday I woke up in tears and it really never got better. I think I totally panicked Jen Lemen (does anyone else out there still miss her blog like I do?). I called her machine with that shaky “I’m really trying not to cry” voice. Nice way to freak out a friend, eh. ‘Though I couldn’t reach Jen, my housemate Sharon was home, so I cried on her shoulder for awhile.
You see, this is my sixth straight week of daily migraine pain and I’m not winning the emotional battle. I’m starting to get glimpse of a possible reality: this might be it for the rest of my life.
All I want to do is work. Is that so crazy? I want to write things and collage things and see people and maybe, just maybe sell a few feminine-face-of-god type items on the website. (Urban Abbess Goods…can’t you just see it?)
Once, Lynette Friesen said to me “Cancer I could handle. I can face death. But a lifetime of pain, no way.” At the time I thought she was describing my condition a bit overdramatically and I laughed. But now, I see what she means. Now, I get it.
After crying on Sharon for a few minutes, I headed out for my weekly acupuncture at the naturopath. My migraine ramped up to a seven on the pain scale after last week’s treatment, which I told her, so she did a gentler procedure on me today — although she said my kidney function was “very low.” “I’m very stressed.” was my reply. The treatment went fine. Melissa has a really great office, very peaceful and zen, and I actually look forward to lying there for awhile with needles in my spine. But on my way home I started getting shaky and by the time I got home I was literally trembling. I thought maybe I needed to eat, so I grabbed a high-protien sandwhich, but still not better. I spent the rest of the day lying down and fighting nausea. I would stand up every now and then to do something essential, like making the kids a snack, or moving the accumulated crap off of the guest “bed” (aka the downstairs couch) so that Souren could come camp out for a few weeks. But after ten minutes of activity my head was spinning so badly I had to lay back down.
Finally at 4pm I realized there was no way on earth that I was going to be able to host Monkfish Abbey, even though I did have four versions of leftover soup defrosting on the stove. So a hasty email and a note on the door called the whole thing off. Alicia’s cousin and his partner from LA were in the NW visitng, and came back home from a day in Vancouver to expereince the Abbey — and alas, no one was here. A couple other people didn’t get the email and showed up, but seeing the note on the door that both Cate and I were sick, decided not to come in and visit Paul lest they catch what might be the plague. The naturopath says next week we’ll just use tunning forks.
Tunning forks. This is what my healthcare practice has come down to. What’s next? Snake charming?
Today I managed to move through life with a level 3 on the pain scale migraine, which right now is downright normal feeling. I took the girls to school in my pajamas and my winter coat, then soaked in epsom salts because all my joints were aching (leftover acupuncture effect?) After an hour of progressive getting-readying with multiple rest stops on top of my bedcovers, I finally got dressed and downstairs. By lunch the nauseua was gone and I could eat a burritto (egg and beans…come on protien!) By the afternoon I was able to clear my bulletin board to make space for the new Zine storyboards (I gave up on a whole book), sort by collage ephemera, answer some email, do an online interview for Redbook over email and chat with my favorite Anglican priest, Paul Roberts — who told me this hilarious off colored joke about George Bush’s visit to hell.
Souren came home from school and showed me funny things on the internet while I finished sorting out four weeks worth of backlog in my office. Then the girls and I walked to the library to pick up a weekend supply of books. On the way home we visited the Fremont Troll and they bravely climbed on his fingers even though it was already dark. Some asshole driver on his cell phone nearly hit us in the crosswalk–how do you not see two children in hot pink jackets!! I’m sad to report that I did not “become the peace I seek in the world,’ but instead yelled at the guy and flipped him off — flipping someone off being the universal sign for “what-the-hell-are-you-thinking-running-over-two-children-with-pink-mini-mouse-umbrellas!” But now we’ve made it home for frozen pizza and a bag of salad, so what else could be better?
Normally I would roll my eyes at any blogger who posted something like this. This is called a “cereal post”…as in “today when I woke up I ate some cereal…” But it’s just so good to have a day this close to normal. It almost makes me scared to go to sleep tonight…what if it’s all gone tomorrow? (Yep, this is how my mind now works. I didn’t used to be this person)
I am, however very very thankful for today. Praise be! Let’s go eat pizza.


i am so sorry about your headache…seriously, not cool…heard about it via the note..i am impressed that you are so cool redbook wants your opinions. i will see you next thursday…i think you are fabulous, thank you for making growth possible for others.
are you writing a magazine? i will be your first customer for A.Goods.
I have been struggling with “chronic” pain for only a few weeks now, and it’s awful! Even though my life has been flooded with chronic “emotional pain” I never felt it carried the same validity as chronic physical pain, and now that I’m feeling it, I feel as if I’m falling apart.
Three cheers for a cereal post, especially when there is so much underneath it.
shalom to you tonight.
ps: I still cry for the loss of Jen Lemen’s writings.
Yep. It’s great to be able to appreciate the simple things in life. It’s quite a blessing.
God bless you on tonight and on tomorrow (maybe you can have some real pizza),
Bro. B
That’s a lot to accomplish in one day - at least in my world!
And yes, I miss Jen Lemen on line. Come back, Jen!
Absolutely. Flip him and give him a few choice words. It is possible the near-miss will wake him up, and let’s all thank God you and your kids were spared.
Maybe you are where John Milton was when he learned that he was losing his eyesight. It was a very tough go for the Marlboro Man of the 17th century, but he did what he could, and let go what he couldn’t.
And remember, even in your pain, you are contributing and you’re valuable. That said, we will still pray that it passes.
rachelle
so glad you had a ‘pizza day’ -i do hope there are more in store soon.
ken is in bed this morning feeling something like you on your spinning day. chronic pain is truly an incomprehensible journey.
kelly
I love this ‘cereal’ post. The part that still shocks me about pain is how hard it is for me to be physically vulnerable and live in my reality, it is like starting my emotional journey all over again, and I think it sucks. I’m sorry for your pain, and your uncertainity, and your physical vulnerability right now. I am thankful for your honesty and the Light that radiates to me from your words. Oh, and I tend to still flip asshole drivers off. When we drive through a certain intersection, one of my kids will invariably say - remember the drivers you’ve flipped off here? I want to “live in a way that takes away the occasion for all wars” …I just miss the mark a lot.